Chit ChatMy Story with Mirena and Possible Endometriosis

My Story with Mirena and Possible Endometriosis

This might get a little personal, so if you’re not into that kind of thing it’s probably best you quit reading..

I’m a very lucky 29 year old with two wonderful children, as many of you know. But in the last few months I’ve been experiencing some very painful female issues.  I’ve been on birth control pills since I can remember, we even conceived the twins while I was on birth control but I always seemed to have problems with the pills they would put me on.

I’ve tried many different birth control pills and always had pelvic pain, irregular periods and other yucky side effects. After trying many different birth control pills that did not help, my doctor had me try Mirena, a hormonal intrauterine device (IUD) that’s inserted into the uterus for long-term birth control (contraception). Mirena is also supposed to help with decreasing severe menstrual pain which I was experiencing.

Unfortunately, I did not have any luck with the Mirena, shortly after insertion I was having many more headaches, gained a lot of weight, became very moody, suffered from more severe pelvic pain and ovarian cysts. I’d go in for an exam and pelvic ultrasound to be sure everything was still in place and check for any infections with those tests coming back ok.  I only had the Mirena in for a few months, but in those few months I gained over 30 lbs and suffered from so many urinary tract infections I lost count. I felt like crap all the time. Needless to say I had the Mirena removed not to long after it was inserted. I know some who have had no trouble with Mirena and that everyone is different, but the Mirena was not for me.

So far I’ve had lots of blood work, pelvic exams and other scans to see if anything was wrong. With everything coming back normal and with all of the problems I am experiencing I am scheduled to have laparoscopic surgery to check for endometriosis/ovarian cancer June 15th.  They’ll go in during the surgery and check for any scarring, “clean it out” if necessary and they are also going to take a biopsy to see if there is any ovarian cancer. Cancer is a word that scares the crap out of me so I’m pretty nervous. I’m hoping and praying nothing is wrong, but I’m also hoping they find something that is causing all these problems so we can get it fixed. It’s definitely an emotional roller coaster, thinking about what could be wrong and dealing with all of the pain and other symptoms I’m dealing with.

I’ll keep the updates coming as soon as I find out anything.

— Update —

So it’s now June 18th, I had the laparoscopy done Friday, June 15th. The doctor who did the surgery stated he saw no signs of scar tissue or endometriosis, thank goodness! He did remove an ovarian cyst that he states may have been causing the problems. He also took a biopsy so I’ll know the results of that in about two weeks, when my follow up appointment is, but he says he didn’t think there was anything to worry about but we’ll know for sure once the biopsy results come back.

As far as pain, I’m very surprised that I was actually able to be up and about so soon, even the day of surgery I was able to walk around. I guess I was expecting more pain like I had with having my gallbladder removed a few years ago. For that I was down for about a week and couldn’t get out of bed.

I will be checking in with the doc today, I’m having a lot of bleeding and some pain still, this morning when I woke up I actually felt nauseous so just want to be sure those are all normal and no infection has set in.

I also want to thank everyone who has sent an email wishing me luck and giving me courage. It really means a lot to me. Thank you for being so supportive!
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